The Warrior Intelligence Tracker captures your crisis in real time, building longitudinal evidence that changes what happens when you walk through that ER door.
Your data is never sold or shared with insurers or employers. Hospital partners see only grouped, de-identified reports. Submissions are consent-based. This data belongs to the Warrior community, not to any institution.
Nine pages: how logging works, what is live now, what is coming, how your information is handled, and where to start whether you are a Warrior, a clinician, or a partner.
Your name is never collected. Warrior Intelligence is not medical advice and does not replace emergency care. In an emergency call 911.
You were born with this, and you have spent your life explaining it to rooms that forget between visits. This is where what you carry gets counted, and kept.
Source: Warrior Intelligence Project self-reported submissions, December 2025 to October 2026. More than 140 crisis reports logged by more than 100 Warriors. A name is never collected, so location is derived from the hospital a Warrior named and the area code of the number they gave for check-ins; the area code is used only to estimate where Warriors are logging from, in grouped form. Warriors have logged from the USA, UK, Nigeria, Canada, Finland, and China. The protocol figure is the share of ER-visit submissions (22 of 71) where the Warrior reported their care team did not follow their protocol. Counts and percentages on this strip are from the October 4, 2026 integrity check (141 submissions after exclusions). These numbers move as new crises are logged.
A clinician sees about an hour of it. The other 23 hours happen where nobody is taking notes. The Warrior Intelligence Tracker is how Warriors write those hours down, without giving a name and with consent, so the patterns become visible.
ER decisions are made in seconds using a single lab value or pain score, while your crisis has been building for days or weeks. That gap isn't a compassion problem. It's a design failure. The Project closes it.
I was admitted in November for a week. Since then my crisis has been on going coming and going. I have been to the emergency room twice In the month of January. Both times they have sent me home because my retic count didn’t show I was in a crisis after I begged them to admit me. The admitting doctors excuse was the pca pump is for serious crisis and she doesn’t want me to get addicted to the morphine in the pca pump so she’s not going to admit me and if my crisis gets worse to just come back to the ER.Warrior
I hate being treated as an addict rather than a patientWarrior
They qualify for a salaried role within the healthcare system. Instead, their expertise is erased at the threshold.Hii White Paper, v2.7
ER decisions rely on a single moment while crises behave like trajectories.
Triggers like thermal shock and hormonal cycles dismissed as "anecdotal."
Warriors who manage complex regimens at home are treated as rookies in the ER.
No app to download. No medical records. No gatekeepers. Log in with a one-time text code only if you want to see your own timeline. Just you, your crisis, and a tracker that treats your experience as the intelligence it actually is.
See how it works. Under 3 minutes, name never collected
Fill out the Warrior Intelligence Tracker in under 3 minutes from any phone or browser, during or after a crisis. Pain level, triggers, ER experience, protocol adherence.
Every entry creates longitudinal evidence. When you walk into the ER, you carry a documented trajectory, not just a moment. That changes the encounter.
Your data compounds with the community's. Patterns surface. Data briefs are generated. Hospitals, funders, and policymakers see what they've been missing.
Sickle cell doesn't stop at adulthood. Warriors' data spans pediatric crises, adolescent transitions, adult independence, and elder care, captured in real time by the Warriors and caregivers who live it.
Warriors have logged more than 140 crisis submissions since December 2025. What follows is what they reported, with the number of submissions behind every figure. This is what happens when the community owns the data.
How to read these numbers. Every figure below is what Warriors reported about their own crises. They are patterns in lived experience, not clinical determinations, diagnoses, or medical advice. Denominators differ because not every question applies to every Warrior, so each figure carries the count it was drawn from.
Source: Warrior Intelligence Project self-reported submissions, December 2025 to October 2026. Every figure is drawn directly from the Warrior Intelligence Tracker and is community-reported. All figures are from the October 4, 2026 integrity check, after test entries and records that did not meet the analysis rules were removed. Treatment ratings count "moderately" and "well" as working.
Life continues between the data points. That's the story numbers alone can't tell.
The lived experience of warriors is not anecdotal evidence.
It is real data, real intelligence.
Beyond the ER: The Data That Can Transform Sickle Cell Care
June 22, 2026 · Jason Robert MooreWarrior Intelligence: A Community-Led Navigation Infrastructure for Real-Time Sickle Cell Crisis Data and Clinical Blind Spot Detection
June 23, 2026 · Jason Moore · Vol. 3, Supplement 1 · Peer reviewed, open accessPeople Living with Sickle Cell Disease Share Their Experiences · Special Report: Innovations in Sickle Cell Disease
September 17, 2024 · As told to Roxanne Scott · Jason Robert Moore, Vice President, Sickle Cell Warriors of BuffaloA month before the Project existed, this is what its founder was already telling national media: rationing hospital visits to protect medication efficacy, timing arrivals around shift change to be seen faster, and the disability filing that ended his last job. The Project is the infrastructure built to make that testimony structural, not anecdotal.
Every entry you submit makes the next Warrior's ER encounter harder to dismiss. It takes under 3 minutes, and your name is never collected.
The Project is being built to be governed by Warriors and guided by research ethics. The Governance Council is being formed now, with the voting seats held by Warriors. Once it is seated, the Council will decide who accesses data, what research gets approved, and how the platform evolves, and will publish those decisions. Researchers must earn Council approval.
Warriors: Seats are being filled now through Warrior-led cohorts. Community Health Worker: Jason Robert Moore, Sickle Cell Warriors of Buffalo.
Research ethics expertise, patient rights representation, and caregiver advocacy partners guide decisions without voting authority.
Who can access data? What research gets approved? How is the Project run? Once the Council is seated, its decisions will be published and traceable.
Today: your name is never collected, and you can request a copy, removal, or deletion of your record from the dashboard at any time. You can withdraw from the Project entirely, no questions asked. Planned: the three per-entry sharing levels below.
Your crisis log is yours alone. Researchers cannot access it. The Project can only use aggregated, de-identified patterns to detect community-wide trends.
Approved researchers can access your data for analysis. Your name stays hidden. You decide what fields they can see.
Your story can inspire and inform. Public submissions feed the dashboard, research publications, and institutional briefings, with your consent to share.
Today, you can request a copy, removal, or deletion of your record at any time. Planned: changing sharing levels on individual submissions and withdrawing consent for specific research projects.
Your journal settings and every saved version of your plans are deleted. If you rated any reflections, only a de-identified record of each rating is kept: which tracker factors it was about, the rating you gave, and the date. Your account is detached from it and the text you were shown is removed, so it cannot be linked back to you. It is kept so the Project can check the journal is working safely. Your crisis reports are separate: you can request their removal from the dashboard at any time.
The Project is built on mutual respect. Warriors own their data. Researchers must earn trust. Institutions must follow Warriors' rules. Here's what that means in practice.
You submit data. You can request its removal or deletion at any time. Institutional partners never own your crisis logs. They see only grouped, de-identified reports, and research use requires approval.
Research requires IRB approval, Governance Council approval once the Council is seated, and written commitments to Warriors. No data access without these checkpoints. Researchers must acknowledge Warriors in publications and share findings before they publish.
Your data is never sold. Your data is never shared with insurers, employers, or marketing firms. Hospital partners see only grouped, de-identified reports. The Project is not a surveillance tool. It is evidence infrastructure built by Warriors, for Warriors.
Your consent when you log covers community reports, de-identified hospital quality briefs, academic research, and policy advocacy, and you can stop participating at any time. Planned: a separate approval decision from you for each research project, so you can grant, deny, or revoke access per project.
Warriors' data generates real institutional change. Research findings get published. Hospitals change protocols. Policy makers see evidence they've never seen. The Project's ethics are designed to ensure Warriors benefit from the data they create.
Warriors' data is evidence infrastructure. It exists to strengthen institutions AND to shift power back to Warriors. That dual commitment is what makes the Project different, and what makes it worthy of your trust.
Share the tracker with your Warriors, receive community-specific data briefs to strengthen grant applications, and add real evidence to your advocacy work. We're actively onboarding CBO partners now.
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